A Breath of Fresh Air

How I'm getting back out into the countryside whilst living with MS

Swings and Roundabouts

I’ve been swimming again, and it was so lovely. I find it very relaxing to gently make my way up the pool, rest, then gently make my way back down again.

I found myself trying to work out how long it was since I’d last been swimming … how long since I last felt that I had the spare energy to go swimming. It was definitely before my last fatigue-filled relapse in February, and could well have been some time before that as I’d not been on great form for a while.

Anyway, it made me feel doubly pleased to be in the water again as it meant that I was still on an upward direction from that time, I was still improving, and hopefully this energy level was going to remain for a while.

I felt on a high all day and couldn’t wait to go again, though I was waiting for the inevitable collapse the next day … which didn’t really happen! Granted, my legs were reluctant to do much for the rest of the day I did go swimming but I didn’t expect them to and I was just buzzing inside anyway so it didn’t matter!

I think that my body is having a bit of a chance to get its act together because it’s had more time to concentrate on doing that recently instead of holding me together through various significant events that I’ve had this year.

It really has been quite a year – full of fab things! It was such a pain that the severe fatigue relapse kicked in just before it all began.IMG_9323

First, there was my parents’ Golden Wedding celebration in March, which was a wonderful opportunity to chat to people I’d not seen in ages, and to enjoy seeing my parents having the chance to share their day with so many people they’d known for so long.

My sister came over from New Zealand to be part of the celebration, and she stayed with me for a few days too. It was great to catch up. I think that we also both appreciated being around someone else who was in a similar position to the other; we didn’t need to explain, our MS is reasonably similar for each of us. I could take her around my town at my pace which was perfect for both of us. (It actually took us three days to do justice to the shops and, in particular, the cafes!)OLYMPUS DIGITAL CAMERA

A couple of months later, our eldest turned 18. Another lovely occasion, as well as a bit scary!

Then in the autumn it was our turn, with our Silver Wedding and a trip to Scotland in early September and a party at home at the end of the month.

In between, I took part in a tour of Anglesey on our tandem, when I was still feeling somewhat below par, and enjoyed a trip to Scarborough, again using the tandem.

So, it’s no wonder my body hasn’t had the strength to take me swimming as well! It’s taken a quieter few weeks, with no big events to plan on the horizon, to give my body the time to rest.

Even though on the outside it doesn’t look like I’ve had to plan much – just turn up in a suitable dress with my family, consider presents appropriate to mark these significant events, invite friends to our party to celebrate with us  – behind the scenes, I’ve had to do some serious micro planning, especially to manage my energy levels.

Arisaig, Sotland

Arisaig, Sotland

The fact that I’ve had to think so much about these events in advance, and the difference that I’m now beginning to experience now they are over, just goes to show how much nervous energy was taken up with planning anything vaguely significant.

As I say, it’s been a fab year, and I seem to have got safely the other side of the extreme fatigue relapse. It feels like an exchange I can live with to have had all these great events which I was able to fully enjoy, but to have had less energy for swimming, archery, canoing or as much tandem riding as I would have liked. At least, it does now that, as life has quietened down, it looks like I’ll have more energy for some of these activities again – remembering as ever the MS mantra of pacing, pacing, pacing!

my anniversary roses

my anniversary roses


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